MOTHERS’ EXPERIENCES OF PARENTING A CHILD WITH DYSLEXIA AT A DYSLEXIA CENTRE IN MALAYSIA
DOI:
https://doi.org/10.11113/jt.v77.6996Keywords:
Mothers, dyslexia, interpretative phenomenological analysisAbstract
The number of children with dyslexia is estimated to be continuously increased in Malaysia. Dyslexia affects the academic learning capacity of children, thus affecting the academic achievement as well. Issues related to dyslexia have led to a more complex role and experience of mothers in taking care of their children with dyslexia as compared to mothers with normal children. This study employed Interpretative Phenomenological Analysis (IPA) to explore the experiences of the mothers involved which included the challenges faced, and coping skills and their hopes in raising children with dyslexia. As a result, three themes have emerged: “life‘s bitterness“ that was related to the lack of time, living expenses, negative feelings, educational issues and distressful role as a mother; “Never mind, I take it that way…†that was related to the extra effort; and “I wish…†that was related to a need for improvement. In conclusion, mothers should be equipped with multi-disciplinary skills such as occupational therapy and psychology, besides other related skills as the key to help children with dyslexia. Health professionals also need to have a better understanding of raising children with dyslexia so that a more effective role in addressing this learning disability can be provided.Â
References
Shaywitz, S. E. and Shaywitz, B. A. 2003. Dyslexia (Specific Reading Disability). Pediatr. Rev. 24(5): 147–153.
Shastry, B. S. 2007. Developmental Dyslexia : An Update. 104–109. J. Hum Genet
Rosana Awang. 2009. A Study Of Dyslexia Among Primary School Students In Sarawak, Malaysia. Scool of Doctoral Studies (Europeon Union) Journal. 1: 250–268.
Chien W. and Lee, I. Y. M. 2013. An Exploratory Study of Parents ’ Perceived Educational Needs for Parenting a Child with Learning Disabilities. Asian Nurs. Res. (Korean. Soc. Nurs. Sci). 7(1):16–25.
Chan, S. M., Ho, C.W., Tsang, C.S.H., Lee, S.H. and Chung, K. K. H. 2008. Estimating Incidence Of Developmental Dyslexia In Hong Kong : What Differences Do Different Criteria Make ?. Aust. J. Learn. Difficulties. 13(1): 1–16.
Mogasale, V., Patil, V., Patil, N. M. and Mogasale, V. 2012. Prevalence Of Spesific Learning Disabilities Among Primary School Children In A South India City. Indian J. Paediatr. 79(3): 342–7.
Oga C. and Fatimah Haron, 2012. Life Experiences Of Individuals Living With Dyslexia In Malaysia: A Phenomenological Study. Procedia - Soc. Behav. Sci. (46): 1129–1133.
Rohaty Majzub. 2005. Dyslexia: Prevalence Diagnosis And Remediation. Pendidikan, J. Kanak-kanak, Simptom Disleksia. 30: 3–19.
Siti Huzaimah Sahari and Aiza Johari. 2012. Improvising Reading Classes and Classroom Environment For Children With Reading Difficulties And Dyslexia Symptoms. Procedia - Soc. Behav. Sci. 38: 100–107.
Mohamad Sattar Rasul, Nur Farhana Waheeda Ramli, and Rose Amnah Abd Rauf. 2013. Pembentukan Karektor Pelajar Kreatif Mengikut Teori Sternberg : Suatu Analisis kandungan Dan Pembangunan kerangka Konseptual. Jurnal Teknologi. 63(1): 7–15.
Shyam, R. and Govil, D. 2014. Stress And Family Burden In Mothers Of Children With Disabilities. Int. J. Interdiscip. Multidiscip. 1(4):152–159.
Karande, S. and Kulkarni, S. 2009. Quality Of Life Of Parents Of Children With Newly Diagnosed Specific Learning Disability. J. Postgrad. Med. 55(2): 97–103.
Chandramuki, D., Venkatakrishnashastry, I. and Vranda, M. N. 2012. Attitudes Of Parents Towards Children With Specific Learning Disabilities. Disabil. CBR Incl. Dev. 23(1): 63–69.
Tammy, L. 2011. Perceptions About Dyslexia Knowledge Among Elementary Education Teachers In The Chippewa Valley Of Wisconsin. Graduate Scbool.
Smith, J. A., Flowers, P. and Larkin, M. 2009. Interpretative Phenomenological Analysis: Theory, Method And Research. London: Sage.
Starks, H. and Trinidad, S. B. 2007. Choose Your Method: A Comparison Of Phenomenology, Discourse Analysis, And Grounded Theory. Qual. Health Res.17(10): 1372–80.
Iwama, M. K., Thomson, N. A.and Macdonald, R. M. 2009. The Kawa Model: The Power Of Culturally Responsive Occupational Therapy. Disabil. Rehabil. 31: 1125–1135.
Crawford, J. R. and Henry, J. D. 2003. The Depression Anxiety Stress Scales (DASS): Normative Data And Latent Structure In A Large Non-Clinical Sample. Br J Clin Psychol. 42(2): 111–31.
Folstein, M. F., Folstein, S. E. and McHugh, P. R. 1975. Mini - Mental State. A Practical Method For Grading The Cognitive State Of Patients For The Clinician. J. Psychiatr. Res. 12 (3): 189 – 198.
Curtin, M. and Fossey, E. 2007. Appraising The Trustworthiness Of Qualitative Studies: Guidelines For Occupational Therapits. Aust. Occup. Ther. 54(2): 88–94.
Brocki, J. M. and Wearden, A. J. 2006. A Critical Evaluation Of The Use Of Interpretative Phenomenological Analysis (IPA) In Health Psychology. Psychol. Health. 21(1): 87–108.
Leech, N. L. and Onwuegbuzie, A. J. 2007. An Array Of Qualitative Data Analysis Tools: A Call For Data Analysis Triangulation. Sch. Psychol. Q. 22(4): 557–584.
Obeid, R. and Daou, N. 2014. Research In Autism Spectrum Disorders The Effects Of Coping Style , Social Support , And Behavioral Problems On The Well-Being Of Mothers Of Children With Autism Spectrum Disorders In Lebanon. Res. Autism Spectr. Disord.10: 59–70.
Nalavany, B. A. Carawan, L. W.and Rennick, R. A. 2011. Psychosocial Experiences Associated With Confirmed And Self-Identified Dyslexia: A Participant-Driven Concept Map Of Adult Perspectives. J. Learn. Disabil. 44(1):63–79.
Awes, A. 2012. Supporting the Dyslexic Child In The Montessori Environment. Communication. 54–75.
Regtvoort, A. G. F. M.and A. van der Leij. 2007. Early intervention with children of dyslexic parents: Effects of computer-based reading instruction at home on literacy acquisition. Learn. Individ. Differ.17: 35–53.
Heiman, T. 2002. Parents Of Children With Disabilities: Resilience, Coping, And Future Expectations. J. Dev. Phys. Disabil. 14: 159–171.
Kermanshahi, S. M., Vanaki, Z., Ahmadi, F., Kazemnejad, A. and Azadfalah, P. 2008. Children With Learning Disabilities : A Phenomenological Study Of The Lived Experiences Of Iranian Mothers. Int. J. Qual. Stud. Health Well-Being. 3: 18–26.
Crnic, K. A., Gaze, C. and Hoffman, C. 2005. Cumulative Parenting Stress Across The Preschool Period: Relations To Maternal Parenting And Child Behavior At Age 5. Infant Child Dev. 14(2): 117–132.
Gharibi H. and Gholizadeh, Z. 2011. Social And Phenomenology Of Mothers Experiences In Living With Children With AD / HD Disorder. Eff. Inf. Technol. Entrep. (A Case Study Golestan Prov. IRAN). 30: 1630–1634.
Wilson C. and Nilsson, M. 2012. The Impact on Mothers of Raising a Child with Significant Disabilities in the Developing World. School of Social Sciences, Peace and Development Work, Växjö, Sweden.
Heiman, T. and Berger, O. 2008. Parents Of Children With Asperger Syndrome Or With Learning Disabilities: Family Environment And Social Support. Research In Developmental Disabilities. 29: 289–300.
Li-Tsang, C. W. P., Yau, M. K. S. and Yuen, H. K. 2001. Success In Parenting Children With Developmental Disabilities: Some Characteristics, Attitudes And Adaptive Coping Skills. Br. J. Dev. Disabil. 47(93): 61–71.
Lemperou, L., Chostelidou, D. and Griva, E. 2011. Identifying The Training Needs Of EFL Teachers In Teaching Children With Dyslexia. Procedia - Soc. Behav. Sci.15: 410–416.
Nurullah, A. B. U. S. 2013. It’s Really a Roller Coaster: Experience Of Parenting Children With Developmental Disabilities. Marriage Fam. Rev. 49: 1–34.
Matenge, B. 2013. An Exploration Of The Lived Experiences Of Mothers Raising Children With Autism. Psychology Department University of Cape Town.
Ministry of Education (MOE). 2013. Data Pendidikan Khas 2013. Ministry of Education.
Ogston, P. L., Mackintosh, V. H. and Myers, B. J. 2011. Research In Autism Spectrum Disorders Hope And Worry In Mothers Of Children With An Autism Spectrum Disorder Or Down Syndrome. Res. Autism Spectr. Disord. 5(4): 1378–1384.
Yujin Kim. 2010. The Pilot Study in Qualitative Inquiry: Identifying Issues And Learning Lessons For Culturally Competent Research. Qual. Soc. Work. 10(2): 190–206.
Cosser, C. P.2005. Raising A Child With Attention Deficit Hyperactivity Disorder: A Parents’ Perspective. University of South Africa.
Hasting, R. P., Kovshoff, H, Ward, .N. J., Degli Espinosa, F. Brown, T. and Remington, B. 2005. System Analysis Of Stress And Positive
Perceptions In Mothers And Fathers Of Pre-School Children With Autism. J. Autism Dev. Disord. 35: 635–644.
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