THE VALUE OF MIXED-METHOD RESEARCH WITH FAMILIES OF CHILDREN WITH AUTISM SPECTRUM DISORDER: A GROUNDED THEORY PROTOCOL

Authors

  • Kartini Ilias Department of Basic Sciences. Faculty of Health Sciences, University Technology MARA, Malaysia
  • Kim Cornish School of Psychological Sciences, Faculty of Medicine, Nursing and Health Sciences, Monash University Australia
  • Miriam Sang-Ah Park Psychology Discipline, School of Medicine and Health Sciences, Monash University Malaysia
  • Karen Jennifer Golden Psychology Discipline, School of Medicine and Health Sciences, Monash University Malaysia

DOI:

https://doi.org/10.11113/jt.v77.7006

Keywords:

Autism Spectrum Disorder (ASD), Neurodevelopmental disorders, mixed-method research, Asia, clinical psychology, embedded design, qualitative, autism, culture, Malaysia

Abstract

This study emphasizes the value of mixed-method research methodologies in research with families of children with Neurodevelopmental Disorders (NDD), specifically Autism Spectrum Disorder (ASD). The category of NDD in the Diagnostic and Statistical Manual of Mental Disorders (5th ed.; DSM-5) includes Intellectual Developmental Disorders, Communication Disorders, Autism Spectrum Disorder (ASD), Attention-Deï¬cit/Hyperactivity Disorder (ADHD), Speciï¬c Learning Disorder, and Motor Disorders. NDD affect not only the child, but the family as well. Limited research has utilized a qualitative or a mixed-methods approach to explore the experiences, stressors, and resilience of parents of children with ASD in non-Western contexts. Providing an example of a mixed-methods design, this paper illustrates a multiple-phase doctoral study on Autism Spectrum Disorder (ASD). The study’s objective is to conduct an embedded design, mixed-method analysis using grounded theory to better understand parents’ (mothers and fathers) experiences, stressors, well-being and resilience in the Malaysian cultural context. Integrating and blending the approaches together allows for deeper analysis and theory development, while allowing rich cultural data to be shared in research areas where limited information is present. Revealing the family system, cultural, and contextual processes, the findings have important implications for professionals and researchers to develop more meaningful, culturally-tailored, and evidenced-based interventions. 

References

Environmental Protection Agency. 2013. American Children and the Environment 3rd ed. (ACE3). Washington, DC: U.S. Environmental Protection Agency.

American Psychiatric Association. 2013. Diagnostic and Statistical Manual of Mental Disorders (5th ed.). Arlington, VA: American Psychiatric Publishing.

Baxter, A. J., Brugha, T. S., Erskine, H. E., Scheurer, R. W., Vos, T. & Scott, J. G. 2014. The Epidemiology and Global Burden of Autism Spectrum Disorders. Psychological Medicine. 1–13.

Cridland, E. K., Jones, S. C., Magee, C. A., & Caputi, P. 2014. Family-Focused Autism Spectrum Disorder Research: A Review of the Utility of Family Systems Approaches. Autism : The International Journal of Research and Practice. 18(3): 213–22. doi:10.1177/1362361312472261

Cornish, K., & Wilding, J. 2010. Attention, Genes, and Developmental Disorders. New York: Oxford University Press.

Gargaro, B. A., Rinehart, N. J., Bradshaw, J. L., Tonge, B. J., & Sheppard, D. M. 2011. Autism and ADHD: How Far Have We Come in The Comorbidity Debate? Neuroscience & Biobehavioral Reviews. 35(5): 1081-1088. doi: 10.1016/j.neubiorev.2010.11.002

Ivarsson, T., & Melin, K. 2008. Autism Spectrum Traits in Children and Adolescents with Obsessive-Compulsive Disorder. Journal of Anxiety Disorders. 22: 969-978.

Mandy, W. P., & Skuse, D. H. 2008. Research Review: What Is The Association Between The Socialâ€Communication Element of Autism and Repetitive Interests, Behaviours and Activities? Journal of Child Psychology and Psychiatry. 49(8): 795-808.

Mannion, A., & Leader, G. 2013. Sleep Problems in Autism Spectrum Disorder: A Literature Review. Review Journal of Autism and Developmental Disorders. 1(2): 101–109. doi:10.1007/s40489-013-0009-y

Nazeer, A, & Ghaziuddin, M. 2012. Autism Spectrum Disorders: Clinical Features and Diagnosis. Pediatr Clin North Am. 59(1): 19–25.

Hayes, S. A., & Watson, S. L. 2013. The Impact of Parenting Stress: A Meta-Analysis of Studies Comparing the Experience of Parenting Stress in Parents 0f Children with and without Autism Spectrum Disorder. Journal of Autism and Developmental Disorders. 43(3): 629-642.

Pakenham, K.I., Sofronoff, K., & Samios, C. 2004. Finding Meaning In Parenting Child with Asperger Syndrome. Correlates of Sense Making and Benefit Finding. Research in Developmental Disabilities. 25: 245-264

Harper, A., Dyches, T. T., Harper, J., Roper, S. O., & South, M. 2013. Respite Care, Marital Quality, and Stress In Parents of Children with Autism Spectrum Disorders. Journal of Autism and Developmental Disorders. 43(11): 2604-2616.

Jones, L., Hastings, R. P., Totsika, V., Keane, L., & Rhule, N. 2014. Child Behavior Problems and Parental Well-Being in Families of Children with Autism: The Mediating Role of Mindfulness and Acceptance. American Journal on Intellectual and Developmental Disabilities. 119(2): 171–85. http://doi.org/10.1352/1944-7558-119.2.171

Nikmat, A.W., Ahmad, M., Oon, N.G., Razali, S. 2008. Stress and Psychological Well Being among Parents of Children with Autism Spectrum Disorder. ASEAN Journal of Psychiatry. 9(2): 65-72.

Wang, P., Michaels, C. A., & Day, M. S. 2011. Stresses and Coping Strategies of Chinese Families with Children with Autism and Other Developmental Disabilities. Journal of Autism and Developmental Disorders. 41(6): 783-795.

Central Intelligence Agency 2012. Retrieved 17 May 2012. The World Fact Book: Malaysia. https://www.cia.gov/library/publications/the-world-factbook/geos/my.html

Braunstein, V. L., Peniston, N., Perelman, A., & Cassano, M. C. 2013. The Inclusion of Fathers in Investigations of Autistic Spectrum Disorders. Research in Autism Spectrum Disorder. 7(7): 858-865.

Green, J. C., & Caracelli, V. J. (Eds.). 1997. Advances in Mixed-Method: The Challenges and Benefits of Integrating Diverse Programs. New Directions for Evaluation (74). San Francisco: Jossey-Bass

Teddlie, C., & Tashakkori, A. .2009. Foundations of Mixed Methods Research: Integrating Quantitative and Qualitative Approaches in the Social and Behavioral Sciences. Sage Publications Inc.

Karst, J. S., & Van Hecke, A. V. 2012. Parent and Family Impact of Autism Spectrum Disorders: A Review and Proposed Model for Intervention Evaluation. Clinical Child and Family Psychology Review. 15(3): 247–77.

Kim, Y. S., Leventhal, B. L., Koh, Y. J., Fombonne, E., Laska, E., Lim, E.-C., Grinker, R. R. 2011. Prevalence of Autism Spectrum Disorders in a Total Population Sample. The American Journal of Psychiatry. 168(9): 904–912.

Toran, H. 2011. Experience and Challenges in Setting up A Model Demonstration Classroom for Children with Autism in Malaysia. International Journal of Educational Administration and Development. 2(2): 37-47.

Kee, Yeo and Lu Xi. 2012. Factors Associated with Diagnosis of Autism Spectrum Disorder (ASD) under the Age of 24 Months in Malaysia. Jurnal Teknologi. 58: 79–83.

Rivers, J. W., & Stoneman, Z. 2003. Sibling Relationships When a Child Has Autism: Marital Stress and Support Coping. Journal of Autism and Developmental Disorders. 33(4): 383-394.

Quintero, N., & McIntyre, L. L. 2010. Sibling Adjustment and Maternal Well-Being: An Examination of Families With And Without An Autism Spectrum Disorder. Focus On Autism And Other Developmental Disabilities. 25(1): 37-46.

Osborne, L. A., McHugh, L., Saunders, J., & Reed, P. 2008. Parenting Stress Reduces the Effectiveness of Early Teaching Interventions for Autistic Spectrum Disorders. Journal of Autism and Developmental Disorders. 38: 1092-1103.

Taha, G. R., & Hussein, H. 2014. Autism Spectrum Disorders in Developing Countries: Lessons from the Arab World. In V. B. Patel, V. R. Preedy, & C. R. Martin (Eds.). Comprehensive Guide to Autism. 2509-2531. New York: Springer.

Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. 2006. Behaviour and Emotional Problems in Toddlers with Pervasive Developmental Disorders and Developmental Delay: Associations with Parental Mental Health and Family Functioning. Journal of Intellectual Disability Research. 50(12): 874-882.

Hedda, M., James, W. H., Aaron, T. E. 2010. Families with Children Who Have Autism Spectrum Disorders: Stress and Support. Exceptional Children. 77(1): 7-36.

Daley, T. C. 2004. From Symptom Recognition to Diagnosis: Children with Autism in Urban India. Social Science and Medicine. 58(7): 1323–1335.

Bahari, S. F. 2012. Qualitative Versus Quantitative Research Strategies: Contrasting Epistemological and Ontological Assumptions. Jurnal Teknologi. 52(1): 17–28.

Bryman, A. 2006. Paradigm Peace And The Implications For Quality. International Journal of Social Research Methodology. 9(2): 111-126.

Johnson, R. B., Onwuegbuzie, A. J., & Turner, L. A. 2007. Toward a Definition of Mixed Methods Research. Journal of Mixed Methods Research. 1(2): 112–133. http://doi.org/10.1177/1558689806298224

Bryman, A. 2007. Barriers to Integrating Quantitative and Qualitative Research. Journal of Mixed Methods Research. 1(1): 8–22. doi: 10.1177/2345678906290531

Bazeley, P. 2010, July. Metaphors for Integrated Analysis in Mixed Methods Research. 6th International Mixed Methods Conference, Baltimore, USA.

Odom, S. and Collet-Klingenberg, L. 2010. Evidence-Based Practices in Interventions for Children and Youth With Autism Spectrum Disorders. Preventing School Failure: Alternative Education For Children And Youth. 54(4): 275-28.

Creswell, J. W. 2007. Qualitative Inquiry and Research Method: Choosing Among Five Approaches. 2nd. ed. Thousand Oaks, CA: Sage.

Charmaz, K. 2000. Constructivist and Objectivist Grounded Theory. In. N. Denzin and Y. Lincoln (Eds.). Handbook of Qualitative Research. Thousand Oaks, CA: SAGE Publications Inc.

Charmaz, K. 2006. Proto Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis. London: Sage Publications Ltd.

Allen, L. M. 2010. A Critique of Four Grounded Theory Texts. The Qualitative Report. 15(6): 1606-1620.

Onwuegbuzie, A. J., & Collins, K. M. T. 2007. A Typology of Mixed Methods Sampling Designs in Social Science Research. 12(2): 281–316.

Onwuegbuzie, A. J., & Johnson, R. B. 2004. Mixed Method And Mixed Model Research. In R. B. Johnson & L. B. Christensen. Educational Research: Quantitative, Qualitative, and Mixed Approaches. 408-431. Needham Heights, MA: Allyn & Bacon.

Burton, L. J., and Mazerolle, S. M. 2011. Survey Instrument Validity Part 1: Principle of Survey Instrument Development and Validation in Athletic Training Education Research. Athletic Training Education Journal. 6(1): 27-35.

Guest, G., Bunce, A., & Johnson, L. 2006. How Many Interviews Are Enough? An Experiment with Data Saturation and Variability. Field Methods. 18: 59-82.

Sandelowski, M. 2001. Real Qualitative Researchers Do Not Count: The Use of Numbers in Qualitative Research. Research in Nursing & Health. 24(3): 230-240.

Tabachnick, B. G., & Fidell, L. S. 2013. Using Multivariate Statistics. 6th Ed. New York, Harper Collins.

Glaser, B. S., & Strauss, A. A. 1967. The Discovery of Grounded Theory. New York.

Ivankova, N. V. & Stick, S. L. 2007. Students’ Persistence in a Distributed Doctoral Program in Educational Leadership in Higher Education: A Mixed Methods Study. Research in Higher Education. 48(1): 93-135.

Brereton, A.V., Tonge, B.J., Mackinnon, A.J. & Einfeld, S.L. 2002. Screening Young People for Autism with the Developmental Behaviour Checklist. Journal Of The American Academy of Child & Adolescent Psychiatry. 41(11): 1369&–375. Giallo, R., Wood, C. E., Jellett, R., & Porter, R. 2013. Fatigue, Wellbeing and Parental Self-Efficacy in Mothers of Children with an Autism Spectrum Disorder. Autism. 17: 465–480.

Constantino, J. N., Gruber, C. P. 2012. The Social Responsiveness Scale Manual, Second Edition (SRS-2). Los Angeles, CA: Western Psychological Services.

Frazier, T. W. , Ratliff, K. R., Gruber, C., Zhang, Y., Law, P. A., & Constantino, J. N. 2014. Confirmatory Factor Analytic Structure and Measurement Invariance of Quantitative Autistic Traits Measured by the Social Responsiveness Scale-2. Autism, 18: 31-44. doi:10.1177/1362361313500382

Lovibond, S. H., & Lovibond, P. F. 1995. Manual for the Depression Anxiety Stress Scales 2nd Edition. Sydney: Psychology Foundation.

Epstein, T., Saltzman-Benaiah, J., O’Hare, A., Goll, J. C., & Tuck, S. 2008. Associated Features of Asperger Syndrome and Their Relationship to Parenting Stress. Child Care Health Development. 34(4): 503–511.

Byles, J., Bryne, C., Boyle, M., & Offord, D.R. 1988. Ontario Child Health Study: Reliability and Validity of the General Functioning Subscale of the McMaster Family Assessment Device. Family Process. 27: 97–104.

Abidin, R.R. 1995. Parenting Stress Index, 3rd ed. Odessa, FL: Psychological Assessment Resource.

Buysse, D. J., Reynolds, C. F., Monk, T. H., Berman, S. R., & Kupfer, D. J. 1988. The Pittsburgh Sleep Quality Index: A New Instrument for Psychiatric Practice and Research. Journal of Psychiatric Research. 28: 193–213.

Bailey, J. 2008. First Steps In Qualitative Data Analysis: Transcribing. Family Practice. 25(2): 127-131.

Johnson, R. B., & Onwuegbuzie, A. J. 2004. Mixed Methods Research: A Research Paradigm Who’s Time Has Come. Educational Researcher. 33(7): 14–26. http://doi.org/10.3102/0013189X033007014

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Published

2015-12-29

How to Cite

THE VALUE OF MIXED-METHOD RESEARCH WITH FAMILIES OF CHILDREN WITH AUTISM SPECTRUM DISORDER: A GROUNDED THEORY PROTOCOL. (2015). Jurnal Teknologi, 77(33). https://doi.org/10.11113/jt.v77.7006